The biopsy of his GI tract went really well and we have some great pictures and information coming from that. Maybe we can finally pinpoint the elusive puking problem. They’ve given us a couple updates so far. Everything is going well. Evan is successfully on bypass and they are starting the operation part of the […]

We gave or hugs and kisses and they took Evan to the OR at about 8:40. He was in a very good mood this morning, lots of playing, talking, and smiles. Dr. Romano expects the surgery to take 4-6 hours and we will get updates about every hour. The GI team will start the operation […]

Evan went back for his cath a little after 11.  I went back with him to the room to help keep him calm until the sedation kicked in.  Usually they give the kids Versed, but instead of making Evan sleepy it makes him energetic so they had to give him some sleepy gas.  They pulled out […]

So here we are, 4 short days before Evan finds himself in the operating room once again. It’s hard to believe that nearly 2 years has passed since he was an inpatient at U of M. It feels like it was such a short time ago. I am not ready, I will never be ready. […]

In 1 month Evan will have his 3rd, and hopefully last, open heart surgery.  It’s been a long time coming but now that it is close it feels like it’s coming too fast.  I feel like I need more time with my little boy.  I think you always feel that way with a medically complex […]

Happy 3rd Birthday Evan!!! Surrounded by friends and family we celebrated Evan’s 3rd birthday at the zoo last weekend. We saw lions, and tigers, and bears…really. Evan’s favorite was the monkeys of course. I can’t believe how quickly the time has passed. It doesn’t seem like it was that long ago that we were bringing him […]

A way-too-overdue photo update!               20-April-2014: Easter! [Show as slideshow]   11-May-2014: Our first Tigers game together and it was on Mother’s Day! [Show as slideshow]   20-May-2014: Playing at Oshtemo park, a favorite place of ours. [Show as slideshow]   01-June-2014: First time mini golfing.  Only lasted about […]

Today Evan is 2 years and 11 months old! I cannot believe how quickly the time has gone by. I miss baby Evan cuddles and all of the “firsts” but big boy Evan is so much fun. In my last post I mentioned that the dietitian suggested that we stop his 2 daytime tube feedings […]

There isn’t a lot new going on with Evan but I wanted to make a quick post of pictures and this video of him counting to 14. Sarah and I were both pretty surprised the first time he did it, it’s not something that either of us were actively working on. It just goes to show how […]

From the last post, we had a cardiology appointment that went really well but that ended with our doctor letting UofM know we are ready for the Fontan.  Ready is a funny concept. All that echos in my head is our surgeon saying how complicated it will be, how instead of booking the OR for […]