T-minus 1 month
In 1 month Evan will have his 3rd, and hopefully last, open heart surgery. It’s been a long time coming but now that it is close it feels like it’s coming too fast. I feel like I need more time with my little boy. I think you always feel that way with a medically complex child… time is a blessing and a curse and you never know what side it is going to smack you with. You try to be optimistic…. like really this is nothing compared to the Norwood (graphic). But on the other hand it will be complicated. There could always be setbacks. Being an optimist and a realist ready to just cope with what life gives you is hard! Here are some pictures of the day-to-day and Evan’s last cardio appointment at Bronson before surgery (which was really more of a social get-together than anything else because Evan is doing pretty awesome!)
I tried to get my grumpy and moody 3 year old to take photos with me (oops sorry I forgot in 2013) and he wasn’t really having any of it. Ha! All I can say is…. do you think I’ll be strong enough to pick him up like that when he is 15? He’ll be a foolish boy if he thinks I won’t try 😉
