Today started out rough.  Not because of anything with baby boy.  He is doing great.  The appointment this morning was great.  Easter was great.  Even the weather decided to cooperate lately.  But today started off with sadness as we learned that another baby earned her angel wings.  The CHD community is so open and supportive […]

We took these pictures at 25 weeks but I forgot to post them. Tomorrow starts week 28, I will take some more and post them soon.

I am so very thankful that our medical professionals caught this when they did. I feel a sense of calm that we have the opportunity to be prepared for what is going to come. I have been doing a lot of reading and I have seen many stories where the family had no idea, even […]

Dear Evan – Yesterday your Dad and I got to see you again during an ultrasound.  It’s amazing how much you have grown in a month.  You used to just take up a little bit of the screen and now your profile takes up the whole thing.  The tech estimated that you weighed 2 lbs […]

I created a new page to describe the differences between a normal heart and one like Evan’s… you can see it under the menu item Evan’s Condition or by clicking here.  

  You don’t want to know how long this took…. but I love it.      

We went to the cardiologist today and were officially diagnosed (previous was best guess by radiologist, OB, etc) Evan does indeed have a congenital heart defect but it’s not hypoplastic left heart syndrome. He has a much more rare (1 in 25,000) defect called Tricuspid Atresia with Left Transposition. It’s two parts, 1) There is […]

The fetal echocardiogram is in the morning, I need to get some rest but I am too nervous. We have seen ultrasound after ultrasound of Evan’s heart but this is the day where we will hopefully learn something substantial about how well it’s working and perhaps get a glimpse into how the surgeries might go […]

When my sister was pregnant with her son, she nicknamed him Baby Tricky because anytime one went to touch her belly, he would stop moving completely.  Tricky indeed.  Well, Baby Tricky is strong in Evan too.  Our first ultrasound (the “normal” one) we were delighted to be able to learn he is a he.  During […]

Dear Evan – I promise I won’t wear those pants to work again.  I know they were a little short anyway, and I thought they still fit ok.  But I know that when I sat down at my desk, you disagreed with me every time.  I’m sorry the waistband was a little too tight and […]