A little bit of catch up is in order… my apologies.  Yesterday Evan came off of the ventilator around noon.  He had completed his sprints beautifully and came off it without any problems.  He thrashed around a little bit so the nurses gave him some dexamethasone to reduce some swelling in his throat.  He was […]

It’s been a day and a half since Evan’s pacemaker was put in and he’s doing fairly well. A doctor came by this morning and “plugged into” the pacemaker to check everything out and said it was working great. There is a sensor that you hold up to the skin near the pacemaker and it […]

  Just talked to Dr. Devaney and Evan is out of surgery. Everything went great. I was expecting them to put in the dual chamber pacemaker and just use one lead and only pace the ventricle but apparently they put in a single chamber pacemaker. When he has his second surgery in a few months […]

  They took Evan back to prep him for surgery at about 2:00pm. The surgery is expected to be about 3 hours. Right now we’re waiting for the surgeon to come and talk to us before the surgery starts. Dr. Hirsch had to go out of town today for work so our surgeon today is […]

  I mentioned in yesterday’s post that his surgery was scheduled for 11:30AM today. The surgeon performing the operation is still working on the 1st case of the day so ours is being delayed. Sarah and I are hanging out with Evan waiting to hear when they are going to take him down. Evan has […]

One of the cardiologists came to see us this morning. She wanted to give us a heads up that the surgeon, cardiologists, and electrophysiologists are in agreement that the pacemaker should be done before Evan goes home. He’s scheduled to go back to the OR tomorrow at around 11:30AM. Normally pacemakers go in a persons […]

This morning Evan had a chest x-ray and everything looks great.  He still has a wet-sounding cough occasionally but it must be residual congestion and is not indicative of any illness.  Good news. Evan also had another EKG and visit from his electrophysiologist.  They had originally turned his pacemaker down to 80, but Evan was […]

You know it’s time for an update when you wake up to several messages on Facebook, text messages, and a voice mail…Sorry I have been slacking on the updates. The truth is there has not been much going on to tell you other than he’s cute and cuddly, but you already knew that. The plan […]

OK… that has much less meaning when you’re not working and all of your days and nights run together. But it still feels good to say it. There is nothing new happening here. We’re still working on feeding and the little guy is still having trouble. We attempt to feed him by bottle for a […]

Evan loves his bear. from William Wood on Vimeo.