Journal

Hemi-Fontan Update #2 – Updated :-)

Posted on January 3, 2012 by Sarah 1 Comment

The same nurse came out and said that Evan is on bypass and Dr. Hirsch is currently performing the Hemi.  Everything is going exactly as planned! When I heard that they had just gotten Evan on the bypass machine and started the surgery I was instantly worried… “what on earth is taking so long,” I […]

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Hemi-Fontan Update #1

Posted on January 3, 2012 by Sarah No Comments

Evan did so great while waiting for the anesthesia team to take him back.  There was a bit of a delay and they got him at about 1.  A surgical nurse practitioner updated us at around 3 and said that so far everything was going as planned but that they had just begun the actual […]

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In waiting…

Posted on January 3, 2012 by William 2 Comments

The first case is running late do we’re waiting in pre-op. Always with that foot in the air. 🙂

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Prayers

Posted on January 3, 2012 by Sarah 11 Comments

I haven’t prayed much throughout everything.  I don’t know why that is.  Well, I do know why but some things should stay personal.  I cannot thank everyone enough for all of their prayers, wishes, thoughts, vibes, everything positive.  Right now I do need to pray several prayers.  I am a very worried mother and I’m […]

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“Where did you get your Christmas cards?”

Posted on December 30, 2011 by Sarah 1 Comment

Our Christmas cards went out a little late this year but they are so adorable and worth the wait.  I’ve had a couple inquiries on where we got them.  They are from Pear Tree Greetings and it was either something like this, an ornament design, or your typical card design.  They have some unique designs and their prices seemed reasonable. […]

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Today’s Heart Cath went splendid!

Posted on December 29, 2011 by William 7 Comments

The title says it all. Evan was amazing today and his heart cath went really well. It was an exhausting day for everyone. We were supposed to be there at 7AM but we were running late as usual. We got up at 5 AM and were out the door at about 5:45. We arrived about […]

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Surgery moved up.

Posted on December 27, 2011 by William 2 Comments

Just wanted to leave a quick note to let everyone know that Evan’s heart surgery has been rescheduled. We will go in for the heart cath tomorrow morning and the surgery will be on Tues. January 3. Here’s my understanding of what is going to happen tomorrow: Arrive at Mott @ 7AM Meet with a […]

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Christmas photos

Posted on December 27, 2011 by Sarah 5 Comments

My family celebrates more on Christmas Eve so we loaded up the car with baby stuff, gifts, and dogs and headed on up.  First stop was Grandma Nan’s house.  We got there early and beat the rush of ~20 people who would be showing up.  Cousin Morgan helped to open Evan’s presents while Aunt Kate […]

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Merry Christmas!

Posted on December 24, 2011 by William 4 Comments

Have a safe and happy holiday!                

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Open Heart Surgery #2 Scheduled :-(

Posted on December 23, 2011 by William 6 Comments

It’s been a few weeks since we’ve made a post… sorry about that. Here’s what has gone on the last few weeks… Since the G-tube surgery Evan has continued to gain weight very steadily. In the last two weeks he’s gained a pound. His current weight is about 14 lbs 12 ounces. Feeding orally has […]

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