Small update on Evan and seizures

Posted on August 25, 2011 by William 7 Comments

The doctor’s restarted Evan’s feeding yesterday afternoon, and recently increased him to 6 mL/hour. They will keep increasing him every 8 hours until he’s at his goal intake of 22 mL per hour and then they’ll switch to 44 every 2 hours, and then 65 every three. This will take several days to get him there but they want to make sure that he is handling it well.

As far as the seizures go, he’s had 3 non-clinical seizures since yesterday afternoon. One at 9:30pm, one at 4:00am, and one at 9:30am this morning. A non-clinical seizure is a seizure in which there are no outwards signs like twitching, loss of body control, non responsiveness, etc. Sarah was holding him at 9:30pm last night and did not notice anything out of the ordinary, it was only after the neurologists reviewed the information from the EEG that they know he had the 3 seizures. They gave another dose and are continuing the maintenance doses of phenobarbital and will continue monitoring him on the EEG. Since they gave the extra dose at 11:00am he has not had another episode as of this post. Typically seizures only last a little while (days to weeks) after a stroke so they will continue the non-seizure medication and reevaluate him at a later time. Research is on-going in the neurology community to see what length of time is best but right now they just don’t know.

The CT scan is still scheduled for next week to take a look at the other side of his brain to see if there is indeed something there indicating another stroke at a different time.

He’s sleeping a little bit more as the phenobarbital is also a sedative but when he’s awake he’s very active and alert. The neurologists came by to examine him a couple times today and they do not see any  signs of any long term effects. In fact they were very pleased to see how active he was and all of the movement he was making.

That’s all for now. Thanks for being on this journey with us.