I cannot begin to put into words how grateful we are to have so many blessings.  People may look at our life and take such pity or call us brave, but really we have so much to be thankful for.  This is our version of normal so it really isn’t as overwhelming or cumbersome as […]

  Dr. Hirsch stopped by today and laid out a tentative schedule for Evan. Two weeks on antibiotics (from the day that the pacemaker was removed, last Wednesday), new pacemaker placed, and then some time recovering and being monitored before we go home. That would put us home sometime the week of Labor Day. It’s […]

We are still just hanging out in the hospital, getting more data on how his heart is functioning and how well he is tolerating everything.  Data is good.  We like data.  Evan continues to do pretty well, although he still has his moments. Not sure if he is just over everything or the fact that […]

  Since the surgery it has been pretty uneventful, thankfully. Evan continues to recover quickly and is becoming more like himself again. He’s still more sleepy than normal but that may come from the lower heart rate and the pain meds. His heart rate has been very consistently 55-65 bpm and he has not really […]

Dr. Hirsch stopped in already and said the surgery is complete. She said that he made it easy on her this time… he owed her one. Our room is not ready so he’s hanging out down in the recovery room. It will be an hour or more before we can see him. They will likely […]

Just wanted to let everyone know that they came to get Evan at 6:30AM to take him to the OR for his surgery. Dr. Hirsch said it would be about 3 hours. They will be removing his pacemaker, leads, and a strip of GORETEX that’s overlying his heart. From there we’ll go to the ICU […]

It is kind of like Groundhog’s Day when you are waiting in the hospital.  There really aren’t any outward signs of progression so every day starts to feel the same and they blur together.  Evan is making signs that he is starting to feel better, or at the very least starting to get used to […]

  Evan has been feeling a little better today but the antibiotics have kicked in and he’s… well… we’ve had to change his bedding 3 times today from leaky diapers and puking. He has not been happy with any of the nurses today, If they come within 5 feet of him he starts crying. I’ve […]

I am beginning to hate getting phone calls at work. I work in a lab.  I have an office with my own line but in theory I should never really be there much – I should be working at a benchtop playing with chemicals.  Think Beaker.  So when I was working in the lab next […]

Well, actually it’s been complete for some time now, but I have had some major network trouble so I was not able to finish the post and upload it. Sorry for those of you that have been waiting to hear something. The short version… it was complicated, it took about 50% longer than she thought […]