Today is Evan’s 1 year G-tube anniversary.  G-tubes are interesting things.  I hate the g-tube.  I love warmly like the g-tube.  It’s one of those necessary evil things.  He went from a scrawny, failure-to-thrive baby into a little boy who has to wear clothes made for children twice his age.  Well, except for pants (he’s […]

I know we haven’t written for a long time.  I know.  It certainly isn’t for a lack of topics or really for a lack of time (although challenging it can’t be an excuse).  It’s more the fact that October… well… sucked.  It was a hard hitting month in the heart community, or at least in […]

Zealen Garrett Shears November 7, 2011 – October 2, 2012 Memorial I have written this post a hundred different times and I still don’t know how to write it.  It has been a week and I still don’t know how to write it. While in the hospital, Finding Nemo was a constant source of entertainment […]

  Here is the sweet baby Zealen we mentioned the other day.  Z’s previous procedures went so well, and now he is very sick and needs all the prayers you can give.  Have a prayer chain?  Add him to it.  Since that post, he has really struggled.     Eventually he will need a heart transplant but currently […]

When we were in the pre-op room, you get asked a lot of questions by a lot of different people.  Come to think of it, you get asked the same questions by different people.  Makes me want to just have them typed out and ready to hand out when we get there. When was the […]

Thank you all for your continued support, prayers, wishes, and words of encouragement for our recent stay and our little warrior.  Crazy to think that after we leave (hopefully on Friday) we won’ t be back for 14 months – the age that Evan is now.  We’ll spend just as much time at home as […]

Just a really quick note to say that surgery is over and it went well. We’re already back to see him and he’s off the ventilator. They decided to put in the dual lead pacemaker…it senses what Evan’s atrium wants to do and paces his ventricle accordingly. 155 beats per minute! We are going to […]

Each time Evan is admitted to Mott Children’s hospital one of these is made to hang in his hospital room. We bring them home and hang them behind his door as a reminder of how precious life is and how strong Evan is. Tomorrow we’ll get another, let’s hope it’s the last one for a […]

Evan had his pacemaker removed on August 15th and spent 3 weeks being closely monitored before we felt comfortable coming home. We came home last Tuesday, September 4. This hospitalization was 33 days and we will only be home for 20 days before we head back to Ann Arbor to have Evan’s pacemaker reimplanted. Evan continues to receive […]

It’s been another relatively uneventful week here at the hospital. Evan continues to heal and his heart rate is stable. On Monday the decision was made by the surgeon and the cardiology team that they would wait the entire 6 week antibiotic course before they put the pacemaker back in, this came as quite a […]