The past few days have been a little rougher for us. Both Bill and I are beginning to feel the strain of doing this routine over and over.  It’s not like we haven’t been enormously blessed and have had such a smooth experience thus far, but we are entering a lull and need to get […]

  When we arrived at the hospital today we were welcomed with more good news. His femoral IV’s, his G-tube (in his nose), and nearly all of his medications have been removed/stopped. He’s doing so well, they are going to transfer us to the moderate care section of the hospital. We would move directly to […]

  Today has been and continues to be a very big day for the little guy. It’s only been three days since his surgery and he’s doing so well. Here’s is a rundown of what has happened today. Chest tube removed Catheter removed Epinephrine stopped Dopamine stopped Down to lowest setting on milrinone Lasix (diuretic) […]

Evan continues to make steady progress and has been showing signs that his body is turning a corner, giving the doctors a lot of optimism in his recovery. – He is continuing to be weaned from various blood pressure medications.  The nurses continued to dial down his epinephrine dosing to reach the level his doctors […]

We spent over 5 hours sitting in waiting rooms and the cafeteria today just waiting to go see Evan. First we couldn’t see him because his ‘roommate’ was coming back from the OR, then we couldn’t see him because they were doing a sterile procedure, then again, then it was shift change, then…. we finally […]

We have not been able to get back and see Evan today. The big room that he is in also has 3 other patients and one of them has had issues today so they are performing some procedures right there in the room. When this is going on there can be no visitors for the […]

Dr. Hirsch came to talk to us at about 1:45pm and said that it went as expected. There was a little bleeding that they had to take care of in the OR but nothing out of the ordinary and nothing to cause concern, it just took some time. During the surgery she completed all of […]

Just got the news from the nurse practitioner. Who’s the happiest daddy in the world? That’s me! We were told that he’s off the heart and lung bypass machine and his heart is doing it all on it’s own. His little heart started right back up and is kicking hard… good boy! It will be an […]

Short and sweet – We just got briefed on Evan’s progress and so far everything is looking great!  Big boy is doing awesome and continues to kick ass in the OR! Dr. Hirsch is now working on installing the BT shunt that will connect the subclavian artery to his pulmonary atery.  She is also going […]

They have taken him back to the operating room. We probably won’t have any updates for at least a couple hours. Here with Sarah and I are my mom (Terri Seiwell), Sarah’s mom, dad, and sister (Nancee, Phil, and Kate Wood). Everyone here at U of M is amazing, we’re so happy that such an […]