Hope everyone had a fantastic Easter!  We had a house full of family and friends and it was wonderful to get together.  I am addicted to getting every “Baby’s First ____” that I can find and  because I have some mental issue about it being authentic and having to purchase it for the actual occasion, […]

Yep, it’s been a while.  We have been home for just about a month.  I guess you can always suspect we are home when the blog goes quiet and we are tending to our little man.  We want to first thank everyone for their kind words and inquiries during this time.  Thank you especially to […]

It’s been a week since our last post and not much has changed. Evan is still in the hospital and we’re still trying to manage being here with him and going to work. I have been going in on Mon, Wed, and Friday and mom has been going in on Tues, Thurs, and all weekend. […]

The other day I put Evy in an outfit that I’m pretty sure Daddy has in his size too, complete with BabyLegs and all.  We went out for a little walk and everyone commented on how handsome he is.  They’re right.  Evy was a little fussy   but required no more than a few extra cuddle sessions.  Mama […]

  Last night the wound vac was removed and they have been changing/packing the wound with sterile wet dressings. They say it looks really good and is healing well… i’ll take their word for it, it looks pretty nasty to me. Physical therapy has been by a couple times and worked with Evan and occupational […]

I figured I could write a long post talking about Evan’s day or how he is doing (great) or how long we will be here (not sure).  But instead I think I will just let the pictures do the talking.  I finally brought my camera to the hospital and got to take some pictures of […]

When you have a child with health problems it can be easy for the milestones to be overshadowed by doctor’s visits, medications, hospitalizations, developmental delays, and just trying desperately to be “normal,” if such a thing even exists. Well today we had a milestone. Evan’s first tooth broke the skin! He’s been chewing on things for a couple […]

  Wednesday morning Evan went for an echocardiogram in order to check his heart for what the doctors call “vegetation.” More simply put, they were looking for any abnormal growth on/in his heart due to the bacteria. While they were looking at his heart they also looked at his overall heart function. The results of […]

Yesterday brought Evan’s first trip to the ER and today brought a couple other firsts. Today was Evan’s first ride in an ambulance (mom’s too) and his first experience with the wound vac. The ambulance ride was not the scary type that most people think of but instead just our little guy hitching a ride […]

  After well over $650,000 in hospital bills and we had not yet been to the emergency room. That all changed last night. I came home from work and my mom mentioned that the bump on his chest seemed to be bigger than normal. He had always had a bump from where the sternum comes […]