Nearly 6 Weeks Post Fontan and Doing Great

Posted on October 19, 2014 by William 3 Comments

20141007_162613000_iOS-001

There isn’t a lot to report but I wanted to share a couple things and some pictures.

It was mentioned in the last post that Evan had some post op fluid accumulating around his lungs and in his abdomen. I’m happy to say that his follow up appointments have been great and the fluid is more or less gone. We have another appointment in a couple weeks to take another look. His incisions are healed and we’re almost to the 6 week mark where we can pick him up under his arms again. You would be surprised how hard it can be to not be able to pick up a kid under the arms. Getting him out of the car seat took a lot of getting used to. I like to put him on my shoulders and walk around with him…getting him off my shoulders, it looks like a monkey attack.

We’ve more or less gotten back into the normal swing of things again, starting daycare and occupational therapy. Evan had his last speech therapy appointment. Graduated! He’s doing well enough with speech that he doesn’t need to go anymore. One more down! I’m so proud of him and so happy with Physiokids and the work they have done with him. We will be replacing speech therapy with physical therapy though… 🙁 Evan’s gross motor skills haven’t improved much over the last several months and we noticed that his feet turn out a bit when he walks and runs. He went for an evaluation and they agreed that he could benefit from some physical therapy. So we’ll start that soon and see if we can strengthen his ankles and get him running and jumping more.

We hope everyone else is enjoying their fall weather, sights, and smells as much as we are. We have been to the apple orchard a few times so far. It’s hard NOT to go when you can smell the donuts cooking from our front yard. Take a look at a few pictures… Enjoying Gull Meadow Farms, his speech therapist, and food! He was so excited to have his own little container of “green flavored” ice cream. Oh and the naked buns, we were fighting some diaper rash. The picture of him on the couch sitting on towels and covered with a towel, yeah, we’re airing it out. 🙂 Good pictures for high school graduation.