Aug 19 update

Posted on August 19, 2012 by Sarah 2 Comments

We are still just hanging out in the hospital, getting more data on how his heart is functioning and how well he is tolerating everything.  Data is good.  We like data.  Evan continues to do pretty well, although he still has his moments. Not sure if he is just over everything or the fact that he is getting his molars or maybe he just is in a little bit of discomfort – he does like his pain meds.  He keeps itching at his chest and the steri strips on his incision.  Poor buddy.  I hate that he has to get cut up again in a couple weeks. 🙁  At least those will be new incisions??  More scars for my baby.  I just really hope that his new pacemaker placement doesn’t impede his development with regards to crawling and pulling himself up.  The thought of it just breaks my heart.

Other than that it is the same ole same ole.  His chest tubes were removed and he only still has his PICC line.  Less wires and such to deal with is nice.  Evan hasn’t been needing any O2 support, even blow-by, so that is nice too.  I’m still just as uncomfortable with the thought of going home any time soon.  Don’t even bring it up to me because it isn’t even a consideration I have now.  Oh!  And we learned that Evan actually has 3 strains of Psuedomonas growing inside him.  Of course we won’t be able to know if the infection has ever cleared or anything.  Keeping fingers crossed…

Also, there is an adorable video of Evan demonstrating his newest trick – waving.  Head on over to the Video page to check it out.  I would embed it here but it is too advanced for me to do – maybe someone with mad skillz will have to do it instead – hint hint.

Hint received loud and clear… not easy to do from a cell phone, but here it is. 🙂

Evan Waves from William Wood on Vimeo.