August 11 Update

Posted on August 11, 2012 by William 2 Comments

 

Evan has been feeling a little better today but the antibiotics have kicked in and he’s… well… we’ve had to change his bedding 3 times today from leaky diapers and puking. He has not been happy with any of the nurses today, If they come within 5 feet of him he starts crying. I’ve managed to get a couple smiles out of him today but for the most part he’s been very hard to please and it has been best to just leave him alone with his favorite cartoon. Nana, Papa, and cousin Xander came to visit today for a couple hours. I put Xander in the crib with Evan and they played ball for a little while and Evan was very happy to see his Papa and gave lots of hugs.

New developments for today.

• The bacteria was identified as Pseudomonas aeruginosa, the same infection that he had in February.
• It does not sound like the antibiotics will need to be changed, both of the antibiotics being used (Zosyn and Gentamicin) work well against this.
• Evan’s g-tube button is very leaky… if he sits up after eating his formula just pours out. We took his button out, made sure the balloon was full enough, and put it back in. Ped’s surgery is going to stop by on Monday to take a look at it. We suspect that he needs a new button anyway. He has had the same size button since he was 4 months old.
• His oxygen saturation has been all over the place today. Generally he sits around 80% with room air. He’s been using a cannula and oxygen since his surgery and they have been trying to wean him back to room air without much success. Just when we think we can pull the cannula off his sats drop to 70%. He was on room air earlier and near 90% and then an hour later he was back to 2L and 75%. We’re thinking that it might be related to feeding times. When he’s feeding his belly is digesting and needs more oxygen pulling it from the rest of his body. We’ll run his food slower and see if it makes a difference. I know Evan will appreciate getting the cannula off of his face.