Day 2 & 3 – More of the same
I can say that Saturday and so far Sunday have been a huge improvement over Friday. Friday night was just ghoulish. It was an insight into how terrible coming back for the Fontan next summer will be with a toddler in tow. Saturday into Sunday was a much better night of sleep for everyone and that was a huge relief. Except when they come in and get his vitals at 1 or 2 in the morning and wake him up… that’s always a pain. So far tonight he doesn’t really want to sleep but daddy thinks he has found the answer to it with a dirty dydee so hopefully that fixes everything. He should be tired because all he has been doing today was play and move around. He is so active it isn’t funny. I think he is starting to figure out this crawling business and is finally not afraid to get on all fours and try to move around. He has taken a couple crawls so it will be very soon that he is adept at it but it does make it harder to crawl in the hospital with a monitor in tow. He keeps getting tangled in it. Saturday we stayed inside more or less and watched a lot of Olympics but went on a couple walks. Saturday night brought thunderstorms and it was pretty dreary during the day but the afternoon turned out quite nice so we were able to take some pictures outside.
We don’t have any new information as far as his care is concerned – we are still waiting to hear from the team on Monday. My gut feeling is that they will be sending us home with additional monitoring and not do any surgical intervention at this time. The last time they adjusted his pacemaker was Friday night at around 7ish and it took a while for it to stick. It wasn’t until 1ish in the morning that his rate finally stabilized around 90. I don’t know why that is and that is the only thing that bothers me. Why was there a 5 hour delay from setting his pacemaker to when it worked consistently? Since then his heart rate has stayed in the 90s and I’m sure that is the reason they will be sending us home. The only other new issue is with the last 2 sets of vitals his blood pressure has been high. I don’t know if it is related to him just being active and therefore not getting a good result or what. It will be interesting to see what his value is during his nighttime vitals – although since they will be waking him up and irritating him I’m sure it will be a skewed value.
In any case, indulge in this cuteness…
