Still in hospital but in great spirits

Posted on February 19, 2012 by William 2 Comments

It’s been a week since our last post and not much has changed. Evan is still in the hospital and we’re still trying to manage being here with him and going to work. I have been going in on Mon, Wed, and Friday and mom has been going in on Tues, Thurs, and all weekend. Mom is especially stressed out trying to get her 40 hours in so she doesn’t have to use vacation since it’s only February and we’re already running very low. I have been very fortunate and been able to work enough from the hospital to only take one day off each week but I need to work even more so that I’m not taking any time off… I worry about what the rest of the year is going to look like.

Evan had his first Valentine’s day and he really loves his balloon. He had his g-tube button changed out, this is something that needed to be done after being in for 3 months and now Sarah and I will do it monthly. Evan continues seeing occupational and physical therapy for oral aversion and general development. The therapists are very happy with his progress and expect him to really take off in the next month or two. Evan really enjoys it when they come to “play” with him. Evan is not exactly eating real foods but we have introduced him to applesauce and carrots by way of him simply playing with the food and getting it on his fingers and then into his mouth. So far he hasn’t really tasted much but I think we’re making progress. For nutrition he’s still on the disgusting Enfaport formula, that lasts until March 1st and then I think we’ll go back to breast milk.

Evan also really enjoys holding himself up on the rails of his crib. He does pretty well, wobbles and tips over quite a bit but it’s a great workout for that little baby 6 pack. He is clearly not a morning person, he wakes up screaming every morning between 6 and 7. Nothing seems to calm him down like a stroll around the hospital. This morning we went all the way to the cafeteria in the main hospital for an omelet and coffee. Everyone tries to get him to smile but in the morning, he’s not having any of it.

The wound vac was pulled off on Wednesday and Friday and although it looked much better they still decided to keep the vac on. The vac constantly pulls blood to the site which promotes healing and the profusion of the antibiotic. Keep it on as long as you want as far as I am concerned. I don’t want another relapse of what happened before. They will take it off again on Monday and look at it. I suspect that they might leave it off this time but we’ll see. If everything looks good (and stays looking good) then I suspect we’ll come home later this week. If they have to put the wound vac back on then it might not be until next week. February is almost over and we’ve only spent a couple weeks at home so far this year.

Here are a few pictures from the week. Also make sure you go take a look at the 3 minute video of Evan and mom playing together.