Seizures under control

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Since reloading the phenobarbital and continuing the maintenance dose Evan has not had any more seizures. This afternoon he was removed from the EEG and we gave him a nice bath to get all the wax and adhesive off of him. He was awake and alert for a very long time today, from about 10:30am until 4:00pm. Lots of looking around, making faces, smiling, and best of all zero crying…which was made up for by the two kids on either side of us screaming most of the day. Seeing him alert, moving around, making faces, it’s the most wonderful thing in the world.

Here’s a few pictures from throughout the day.

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Comments

7 responses to “Seizures under control”

August 26, 2011

Mom

he looks so much better. Looks like they took half his hair off with the sensors. bet he liked getting those off. poor baby. wish i could take away all your pain. love u little bear. Stay strong for Nanna & Poppa, Mommy & Daddy.

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1. August 26, 2011
  
  William
  
  He still had some stuff in his hair. Didn’t want to scrub too much. It’s all still there, they used an oil to release the adhesive so it didn’t pull hair. He didn’t cry at all during the whole thing do it must not have hurt. 🙂
  
  Reply
August 26, 2011

jennifer

He looks so happy and cute so glad to hear the wonderful news !!!!!!!!!!!!!

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August 26, 2011

Ashley

Yay! Go Evan! So happy for you guys! Again, I’m tearing up with joy! So excited to meet him! Kambree wants to give him a kiss she said! 🙂

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August 27, 2011

Jenny

Great news! So happy to hear it! Go Evan Go! 🙂 🙂

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August 27, 2011

Jan Kimberlain

Every day I read these posts and have to pause until the tears subside. Thank you so much for all the postings. Keep believing in him. He’s one strong baby!!!!! God has big plans for him!

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August 29, 2011

Grandma Nancee

Oh momma and dada – he looks so wonderful. He needs those happy moments !!!! You look so relieved and Evan is such a sweet little guy. God Bless.

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