Seizures under control
Since reloading the phenobarbital and continuing the maintenance dose Evan has not had any more seizures. This afternoon he was removed from the EEG and we gave him a nice bath to get all the wax and adhesive off of him. He was awake and alert for a very long time today, from about 10:30am until 4:00pm. Lots of looking around, making faces, smiling, and best of all zero crying…which was made up for by the two kids on either side of us screaming most of the day. Seeing him alert, moving around, making faces, it’s the most wonderful thing in the world.
Here’s a few pictures from throughout the day.
