Not home this weekend… but soon.
One of the cardiologists came to see us this morning. She wanted to give us a heads up that the surgeon, cardiologists, and electrophysiologists are in agreement that the pacemaker should be done before Evan goes home. He’s scheduled to go back to the OR tomorrow at around 11:30AM. Normally pacemakers go in a persons upper left chest and the leads are fed through an artery and attached to the inside wall of the heart. In babies there is not enough room so they place it in his abdominal space and the leads are attached to the outside of the heart. They will go through the existing incision site to attach the leads to the heart and make a separate incision in his belly to put the pacemaker. Since he’ll be in the OR and knocked out again he will need to be on a ventilator which is pretty unfortunate, he’s just now starting to do well with feedings so we might be starting at square one with that again. Recovery time for a pacemaker is very short, we will likely spend Friday night in the ICU and he’ll be taken off of the ventilator and moved to moderate care on Saturday. After that all we’ll be waiting for is his little boy surgery and we’ll be on our way home. I expect that we will be home early next week! I really thought that we would be in the hospital for 5-6 weeks, but he’s done better than anyone would have expected and I couldn’t be happier. I’m so excited to spend some time at home with him before I have to go back to work. They are sending someone specializing in pacemakers to talk to us about it all, so I’ll try and post again after that with any new information information.