Missing Evan…
We have not been able to get back and see Evan today. The big room that he is in also has 3 other patients and one of them has had issues today so they are performing some procedures right there in the room. When this is going on there can be no visitors for the other patients in that room. I feel bad for the baby that’s having the issues and her family but I am missing my boy. They tell us he is doing fine, which is great, but this waiting room is L-A-M-E. He has been weaned from one of his medications but he’s still got a lot of others and lots of swelling, blood pressure issues, breathing issues, and his ventricle is still not pumping on its own. They say that these things are normal and can be caused by all the swelling and surgery that he’s had. We’ll keep watching it and hope that it corrects itself as his body heals.