Welcome!

We have created this page to share the life of our son Evan with friends and family.

Evan was diagnosed with a congenital heart defect called tricuspid atresia with levo transposition of the greater arteries. Have a look around the site, learn about our lives with Evan, and watch him grow up.

 

Bath time is scary!

Evan has learned to love bath time but still gives us looks like this once in a while when you hit him with the sprayer. See the video here.

 

The doors to the new C.S. Mott Children’s hospital open!

After 5 years of construction and many more years in planning the new $754 million hospital is finally open. It’s amazing and we’re so glad to have one of the best child heart centers in the nation (#3 in the nation!) so close to home. Visit the new hospital online.

 

Congenital Heart Defects are the #1 birth defect worldwide.

1 in 100 babies are born with a heart defect and 100,000 babies each year will not live to celebrate their 1st birthday because of it. Most heart defects can be detected before birth and plans can be made for repairs.

 

Therapy begins

Posted on April 17, 2012 by Sarah 4 Comments
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The day after Easter, Evan had his first cardiologist appointment in a month.  It is abundantly clear that Evan is growing more and more aware of his surroundings.  Even from the very beginning he has been an extremely observant child.  We heard so many comments in his first week of life that he looked much [...]

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Hoppy Easter!

Posted on April 8, 2012 by Sarah 4 Comments
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Hope everyone had a fantastic Easter!  We had a house full of family and friends and it was wonderful to get together.  I am addicted to getting every “Baby’s First ____” that I can find and  because I have some mental issue about it being authentic and having to purchase it for the actual occasion, [...]

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A month already?!?

Posted on March 21, 2012 by Sarah 6 Comments
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Yep, it’s been a while.  We have been home for just about a month.  I guess you can always suspect we are home when the blog goes quiet and we are tending to our little man.  We want to first thank everyone for their kind words and inquiries during this time.  Thank you especially to [...]

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Still in hospital but in great spirits

Posted on February 19, 2012 by William 2 Comments

It’s been a week since our last post and not much has changed. Evan is still in the hospital and we’re still trying to manage being here with him and going to work. I have been going in on Mon, Wed, and Friday and mom has been going in on Tues, Thurs, and all weekend. [...]

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Setbacks… but a handsome setback

Posted on February 12, 2012 by Sarah 6 Comments

The other day I put Evy in an outfit that I’m pretty sure Daddy has in his size too, complete with BabyLegs and all.  We went out for a little walk and everyone commented on how handsome he is.  They’re right.  Evy was a little fussy   but required no more than a few extra cuddle sessions.  Mama [...]

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