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Small update on Evan and seizures

The doctor’s restarted Evan’s feeding yesterday afternoon, and recently increased him to 6 mL/hour. They will keep increasing him every 8 hours until he’s at his goal intake of 22 mL per hour and then they’ll switch to 44 every 2 hours, and then 65 every three. This will take several days to get him there but they want to make sure that he is handling it well.

As far as the seizures go, he’s had 3 non-clinical seizures since yesterday afternoon. One at 9:30pm, one at 4:00am, and one at 9:30am this morning. A non-clinical seizure is a seizure in which there are no outwards signs like twitching, loss of body control, non responsiveness, etc. Sarah was holding him at 9:30pm last night and did not notice anything out of the ordinary, it was only after the neurologists reviewed the information from the EEG that they know he had the 3 seizures. They gave another dose and are continuing the maintenance doses of phenobarbital and will continue monitoring him on the EEG. Since they gave the extra dose at 11:00am he has not had another episode as of this post. Typically seizures only last a little while (days to weeks) after a stroke so they will continue the non-seizure medication and reevaluate him at a later time. Research is on-going in the neurology community to see what length of time is best but right now they just don’t know.

The CT scan is still scheduled for next week to take a look at the other side of his brain to see if there is indeed something there indicating another stroke at a different time.

He’s sleeping a little bit more as the phenobarbital is also a sedative but when he’s awake he’s very active and alert. The neurologists came by to examine him a couple times today and they do not see any  signs of any long term effects. In fact they were very pleased to see how active he was and all of the movement he was making.

That’s all for now. Thanks for being on this journey with us.

Comments

7 responses to “Small update on Evan and seizures”

  1. Mom Avatar
    Mom

    Praying for him. He looks like he’s trying to smile in this picture. Stay strong and positive. Love ya

  2. Bilinda Avatar
    Bilinda

    Thanks for the update Bill. Sounds like things are going well right now and I am praying that continues. He does look like he is smiling in that picture. What a strong and sweet little man you have there.

  3. Edith Partlo Avatar
    Edith Partlo

    Billy, thank you for sharing this journey with us. With all the gadgets now a days it is so easy to post one time and not have to make all those freakin phone calls and keep repeating your self. Always know you and Sarah and Evan mean so much to so many people out there that are pulling for you guys.So just remember that and lean on those people when you need to. If you need anything let us know. hUGS AND KISSES TO YOU ALL.

  4. Grandma Nancee Avatar
    Grandma Nancee

    Please let me know if I can do anything for you. I will be there ponto. Love you and the post of him smiling is a joy to my heart. xxoo

  5. GG Jo Avatar
    GG Jo

    That smile says it all.I think he is saying ” I love all of you and I”m going to be ok.

  6. Jan Kimberlain Avatar
    Jan Kimberlain

    Love this smiling picture. So sweet. Brought tears to my eyes… Prayers for all of you.,.

  7. GG Jo Avatar
    GG Jo

    Praying for our sweet angel. What a brave little man.I want so bad to hold him and see the sweet smile like no one else

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