After well over $650,000 in hospital bills and we had not yet been to the emergency room. That all changed last night. I came home from work and my mom mentioned that the bump on his chest seemed to be bigger than normal. He had always had a bump from where the sternum comes […]

I wanted to make a very abbreviated post so I can post some pictures before I start talking about our most recent hospital stay…. We came home from the hospital on January 24th and since then he has been very fussy and all around unhappy. We continue to fight with the throwing up and it’s […]

We have been home for a couple of days and realized that we have left some (non- Facebook) people in the dark.  Sorry about that. On Sunday they had finished monitoring Evan’s chest tube drainage.  He received the all-clear to take it out and Will and I got to be in the room when they […]

Oh Evy I wish so much that we weren’t spending this day in the hospital.  I was so looking forward to having a nice 6-mo picture of you propped up in your chair, smiling away.  I am so sorry that  you are laying in the hospital, doing better but feeling crummy.  Ever since the Hemi-Fontan […]

  I’ll start off saying that everything is okay now and it was not life threatening just to ease some minds before I get into all the details. Today at 11AM Evan had a routine follow up appointment with the cardiologist in Kalamazoo. I had to attend an all day training at work so Sarah […]

I have been wanting to write a post for a while now but these past few days have been rough, really rough.  Like the worst so far.  We went from continuous feeding  to bolus feeding and I don’t know exactly what is going on but something isn’t working.  Our inital trial at bolus feeding was […]

The day started off a tid bit questionable as Evan woke up at 7 screaming and was  quite grumpy for the next couple hours.  I was worried that he would be saucy all day but that quickly went away and he was his charming, smiley self the rest of the day.  We had the visiting […]

Day 5 – Saturday Evan was definitely starting to feel more like himself.  He was much more smiley today and I think he likes having his own room too.  There is no other baby around to take away any attention, but really how could you not keep all of your attention on him?  He is […]

  We have had a couple pretty good days. Erica was our nurse on Thursday, she was our favorite nurse from our previous stay. Evan continued to rest and recover. Erica sat him up hunched over some bundled blankets and he really loved it. He spent most of the day sleeping sitting up or sitting […]

Holy cow is it different being here for the second operation.  Evan is progressing quickly and is far ahead of where he was recovery-wise at this stage months ago.  Early this morning he was extubated and off of the ventilator!  So 18ish hours after handing our precious baby boy off for his second open heart […]