Back to Moderate Care
Sorry for the lack of updates the last couple days but as they say, no news is good news. Evan was moved out of the PCTU yesterday (Friday) morning and back to moderate care. He has not had any more episodes and he’s looking much better. Pediatric surgery has been following him and they have not seen anything in his x-rays that would lead them to believe that NEC is an issue. I’m still waiting for a decent explanation to what exactly happened with his heart, why, and what can be done if anything. I don’t know that we’ll ever really know. Dr. Mackie did say something about the fetal echo that has me concerned, his ventricle function was not as good after the episode as it was prior to the pacemaker surgery. He said this could be temporary. Did the coronary eschemia leave any long term effects? It’s been several days, do another echo and tell me if it’s temporary or permanent. Did portions of his heart tissue die? What does this mean? Can anything be done about it? No, probably not, but I’d still like to know if damage was done, how much, and what this may mean for his heart down the road.
Evan cannot have anything by mouth for 3 more days. He’s been amazingly good about it despite how hungry he must be. He’s been more awake and more fussy, but overall he’s been pretty good. His belly has to hurt from being hungry so he’s not getting as much sleep from the discomfort and surely from not getting those milk coma’s after a nice warm bottle. When they allow him to feed they will start out really slowly… The nurse practitioner stated that it would probably be over the course of 5 days. That means that the earliest we would leave would be August 29th. <sigh>
Tomorrow is Evan’s one month birthday! Yay. Happy Birthday little man. It’s hard to believe that it’s already been a month since you brightened all of our lives. Harder to believe all that you’ve gone through in such a short period of time. Life isn’t all it’s cracked up to be sometimes but it will get better my son, it will get better.
A special thanks to Evan’s friends at Community Shores Bank and Grandma Nancee for bringing Evan this huge monkey.
