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Evan after surgery

Dr. Hirsch came to talk to us at about 1:45pm and said that it went as expected. There was a little bleeding that they had to take care of in the OR but nothing out of the ordinary and nothing to cause concern, it just took some time. During the surgery she completed all of the things as planned and went ahead and inserted the cardiac IV line under the skin and into the heart. She told us that Evan would be wheeled up to the PCTU at around 2:30 and by 3:30 we should be able to see him. The unit was not ready for us at 3:30 and we had to wait until about 4:15pm. Our time with Evan was cut short (we got about 30 minutes with him) as a patient in the space next to Evan was being brought in and they do not allow people in the room during these times. We were told to come back in an hour. Since then we have spent some more time with him, talked to his doctor’s and nurses, and gotten a slightly better understanding of what is going on.

In general Evan is doing well and the doctor’s and nurses are watching him very closely as his body responds to the surgery. A couple things that they are keeping a close eye on and working proactively to remedy are 1) his eyes are dilated and non-responsive, we are told that this is a typical reaction to atropine usage during surgery (atropine is used to help the nodes of the heart fire) and should wear off in a day or so. It can also be a sign of something more serious so they will perform an ultrasound on his brain to make sure that everything is ok. 2) His belly and chest cavity are filling with fluids due to the surgery, this is a normal reaction but the excess fluids need to be drained one way or another. Excess fluids cause undue stress on the heart and lungs. Typically, this is done through medications like lasix where the fluids will be processed by the kidney and excreted as urine. This also will take several days to remedy. He’s on many medications and has many tubes and wires all over him. He’s obviously on medication for pain, he’s feeling nothing. He’s also on medication for blood pressure, swelling, fluid retention, and vasal dilation (expanding and stretching of veins/arteries). As the days progress the medications and assistance from machines will be turned down as Evan gains the ability to do them on his own. Right now he is heavily sedated, he does not respond to our touch, or move on his own, he’s completely and utterly out of it. Tonight they will do no weaning from the meds or equipment and just give his body time to adjust.

CAUTION:
I am going to describe the scene in much more detail (and pictures) on a separate page. Some people may consider these graphic and be bothered by them. If you want to see the pictures and read the detail you can go to this webpage.

Comments

8 responses to “Evan after surgery”

  1. Nancy Avatar
    Nancy

    What a trooper- all of you. Our thoughts and prayers keep heading your way-

  2. Jenny Avatar

    He looks great you guys! And it sounds like he’s doing well. Keeping him in our thoughts and prayers for a smooth and swift recovery!

    1. Sarah Avatar
      Sarah

      Thanks Jenny. We appreciate your support and encouragement throughout this. I just keep thinking one step closer to going home… one step closer to going home…

  3. ashley Avatar
    ashley

    Just saw the other post. I just teared up. Poor baby. At least he is getting everything he needs. Lots of love and prayers to you guys!

    Ash

  4. Jenn Elenbaas Avatar
    Jenn Elenbaas

    Wow. Technology is amazing. The pictures are heartbreaking to look at, but it is impressive how they are able to help these little ones. I can’t imagine anything could be harder on you guys than this. Better days to come…..
    Thoughts and prayers everyday for you all.

  5. Aunt Margaret Avatar
    Aunt Margaret

    We are so lucky to be living in these times when something can be done for babies like Evan. I know what a difficult time this is for you, but know our love and prayers are wih you.

  6. Jo Wood Avatar
    Jo Wood

    Happy 23 days old .LOVE YOU SO MUCH. GG Jo

  7. […] Evan’s Norwood hospital stay lasted 6 weeks (technically I suppose it was 5 weeks considering they waited until he was 1 week old to operate).  I make a concerted  effort to kiss his scars and rub his chest in the hopes that he will grow up not ashamed or uncomfortable with his appearance.  But in that week I did soak up that time that I knew would be precious with my unadulterated baby before his body would become a collector of scars.  Evan came through the Norwood in complete heart block necessitating a pacemaker and has survived with no ill lasting effects from his stroke.  I am so, so proud of him and all of the other little babies that fight for their lives. […]

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