livingwithevan.com

Updates… video’s and pictures included

 

Evan has been doing so well, we could not be happier about his progress. He’s gained about 6 ounces since birth and boy does he eat. Sarah’s milk came in and she’s been a machine. I checked the refrigerator in the ICU tonight before we left and there was enough in there for his next 5-6 feedings. She was very excited about it and so am I, much better for him than formula.

The doctors are watching his intake and output very closely to make sure he’s getting the right amount of calories. We actually weigh each diaper after a changing and I can tell you that a Pampers size 1 diaper has a tare weight of 20 grams. His heaviest diaper, was over 120 grams! Guess that’s what happens when they give you meds to make you urinate. They regularly increase his total calories and he’s been taking it in stride. He’s up to feeding every 3 hours and taking 67mL (2 1/4 ounces). He takes the first 3/4 of it really, really fast and then he wants to take a nap and we have to coax him to eat the rest by bugging him. 🙂

Tomorrow is our last day with him before the surgery. He’ll be fine, I know he will, but it’s really hard to think about what is going to happen to him without completely losing it. Despite everything that we’ve done to learn about and prepare for this, it’s still really, really hard. We’re having him blessed tomorrow afternoon and several family members will be there for it. Thursday morning they will wheel him down to a waiting area right outside the OR at about 8am. Sarah and I can be with him in that room right up until they wheel him into the OR. Surgery starts at about 8:30am and will last a 3-4 hours. We’ll go on a tour of the cardiac ICU and chew on our nails in the waiting room until he’s out. I’ve seen many pictures of other babies after they come out of the surgery, it’s not pretty and it’s going to be heart wrenching. We don’t know what life is going to be like for him immediately after the surgery, supposed to meet with the surgeon tomorrow and we’ll find out. How long will he be sedated? How long will he be on a ventilator, feeding tube, catheter, etc? What should we expect in general….???

Enough of daddy being a downer…. here’s some pictures and video of the most handsome baby you’ve ever seen.

OK, OK… I know daddy is mean and should let the little guy get his rest, but he’s sooooo cute when he’smoving around I had to mess with him a little bit. (I removed the audio in this one, the nurses were talking in the background and ruined it, but the video is still great)
Do you have your tickets? from William Wood on Vimeo.

So I am sitting in the chair feeding the little fella and I sit him up to burp him and what do find? Evan has the same issue as daddy, his pants never seem to cover everything they are supposed to.
Evan is just like daddy. from William Wood on Vimeo.

Comments

8 responses to “Updates… video’s and pictures included”

  1. Jenny Avatar

    Awwww such cute pictures! I’m so glad he is eating so well- seriously, he is doing above and beyond amazing. We’ll be thinking about you guys tomorrow- Tomorrow is the first giant step and everything after that will be one step closer to getting your little man home.

  2. Audrey Aamodt Avatar
    Audrey Aamodt

    What a beautiful baby boy, He is sooo cute. Jim and I wish you all well and will be saying prayers for all of you for thursday’s surgery. If you ever need anything just call and ask ok. We think he is just adorable. he is very lucky to have you both as parents. God bless you ..

  3. Aunt Dani Avatar
    Aunt Dani

    Billy!!!!!! THESE R …HE IS AWESOME!!!!!! I love being able to be apart of this with U !! Thank U for posting all the updates, pics, videos and intimate thoughts and feelings with us!! Evan is one lucky baby to have U as a daddy! This is beautiful!

  4. Jenn Elenbaas Avatar
    Jenn Elenbaas

    I love the pictures you guys! It is really cool to be able to follow his progess and see all the cute pics of him. Thank you for sharing. Continue to stay strong (you are all amazing) ~ lots of prayers and good thoughts being sent your way.

  5. jennifer Avatar
    jennifer

    He looks really good and way to go Sarah on all the milk making it is very exciting to see all that you are able to make for your little one ! I am so happy he is eating better now . We are thinking of you guys and will be praying tomorrow for him he is in the lords hands and they are very good ones too. I cant image what you have to be thinking right now . Give him a kiss for us love ya

  6. Susan Ahrenholz Avatar
    Susan Ahrenholz

    Great pictures! He is just too cute for words! Thank you again for sharing your pictures and your thoughts. I will be thinking of you all tomorrow and praying hard that all will go well.

  7. Edie Partlo Avatar
    Edie Partlo

    I am so very glad you have included all of us in your journey with evan, we all feel like we know him so well because of you, for that I thank you. Evan will be in the lords hands in just a few hours and then he will be back in his mommy and daddys hands where he belongs. Hugs to you all.

  8. Nicole Horvath Avatar
    Nicole Horvath

    Bill I think you’ve found your calling….being a proud papa! thinking of you guys

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