Being in general care is pretty nice.  The room is a typical hospital set-up; 2 beds in the room separated by a curtain running down the middle.  There is also a couch that can be used for a bed, meaning Evan would be able to have an overnight visitor.  I elected to stay overnight with […]

A little bit of catch up is in order… my apologies.  Yesterday Evan came off of the ventilator around noon.  He had completed his sprints beautifully and came off it without any problems.  He thrashed around a little bit so the nurses gave him some dexamethasone to reduce some swelling in his throat.  He was […]

It’s been a day and a half since Evan’s pacemaker was put in and he’s doing fairly well. A doctor came by this morning and “plugged into” the pacemaker to check everything out and said it was working great. There is a sensor that you hold up to the skin near the pacemaker and it […]

  I mentioned in yesterday’s post that his surgery was scheduled for 11:30AM today. The surgeon performing the operation is still working on the 1st case of the day so ours is being delayed. Sarah and I are hanging out with Evan waiting to hear when they are going to take him down. Evan has […]

This morning Evan had a chest x-ray and everything looks great.  He still has a wet-sounding cough occasionally but it must be residual congestion and is not indicative of any illness.  Good news. Evan also had another EKG and visit from his electrophysiologist.  They had originally turned his pacemaker down to 80, but Evan was […]

  Today has been and continues to be a very big day for the little guy. It’s only been three days since his surgery and he’s doing so well. Here’s is a rundown of what has happened today. Chest tube removed Catheter removed Epinephrine stopped Dopamine stopped Down to lowest setting on milrinone Lasix (diuretic) […]

Evan continues to make steady progress and has been showing signs that his body is turning a corner, giving the doctors a lot of optimism in his recovery. – He is continuing to be weaned from various blood pressure medications.  The nurses continued to dial down his epinephrine dosing to reach the level his doctors […]

We spent over 5 hours sitting in waiting rooms and the cafeteria today just waiting to go see Evan. First we couldn’t see him because his ‘roommate’ was coming back from the OR, then we couldn’t see him because they were doing a sterile procedure, then again, then it was shift change, then…. we finally […]

We have not been able to get back and see Evan today. The big room that he is in also has 3 other patients and one of them has had issues today so they are performing some procedures right there in the room. When this is going on there can be no visitors for the […]

Dr. Hirsch came to talk to us at about 1:45pm and said that it went as expected. There was a little bleeding that they had to take care of in the OR but nothing out of the ordinary and nothing to cause concern, it just took some time. During the surgery she completed all of […]