Sorry that it’s been several days without an update… I know you won’t believe it but we’ve been pretty busy. This having a kid thing is pretty time consuming. Who knew? Let’s see… Evan sleeps really well. So far the nights have been pretty good, he’s been sleeping for 6+ hours at night but we […]

  It’s a very surreal feeling, being back in general care. We were here once before for a very short time. We thought then that we were on our way home, that was two weeks ago. Hopefully this time will be different. It feels different. All that stands in our way is one more trip […]

The short of it: Evan had a seizure early this morning and several more throughout the day.  They are the result of a stroke he had some time ago but not sure when.  He is comfortable, sleeping, and stable.  His brain activity is being monitored continuously for 24-48 hours.  He is NPO again (removed from […]

It has been seven days since Evan’s cardiac episode (NEC scare) and the surgeons are slowly starting to feed the little guy again. This morning they started him out at 3 mL per hour for 24 hours. It’s being pumped directly into his stomach through an NG tube continuously. If there are no bad signs by […]

It may not seem like much, being one month old… but given what Evan has gone through in his short time here we wanted to celebrate a little. Evan, You never cease to amaze us. Every coo, every quivering lip, every smile, every scowl, every cry, every movement, and every look of amazement as you look […]

Being in general care is pretty nice.  The room is a typical hospital set-up; 2 beds in the room separated by a curtain running down the middle.  There is also a couch that can be used for a bed, meaning Evan would be able to have an overnight visitor.  I elected to stay overnight with […]

A little bit of catch up is in order… my apologies.  Yesterday Evan came off of the ventilator around noon.  He had completed his sprints beautifully and came off it without any problems.  He thrashed around a little bit so the nurses gave him some dexamethasone to reduce some swelling in his throat.  He was […]

It’s been a day and a half since Evan’s pacemaker was put in and he’s doing fairly well. A doctor came by this morning and “plugged into” the pacemaker to check everything out and said it was working great. There is a sensor that you hold up to the skin near the pacemaker and it […]

  I mentioned in yesterday’s post that his surgery was scheduled for 11:30AM today. The surgeon performing the operation is still working on the 1st case of the day so ours is being delayed. Sarah and I are hanging out with Evan waiting to hear when they are going to take him down. Evan has […]

One of the cardiologists came to see us this morning. She wanted to give us a heads up that the surgeon, cardiologists, and electrophysiologists are in agreement that the pacemaker should be done before Evan goes home. He’s scheduled to go back to the OR tomorrow at around 11:30AM. Normally pacemakers go in a persons […]