The short of it: Evan had a seizure early this morning and several more throughout the day.  They are the result of a stroke he had some time ago but not sure when.  He is comfortable, sleeping, and stable.  His brain activity is being monitored continuously for 24-48 hours.  He is NPO again (removed from […]

Being in general care is pretty nice.  The room is a typical hospital set-up; 2 beds in the room separated by a curtain running down the middle.  There is also a couch that can be used for a bed, meaning Evan would be able to have an overnight visitor.  I elected to stay overnight with […]

This morning Evan had a chest x-ray and everything looks great.  He still has a wet-sounding cough occasionally but it must be residual congestion and is not indicative of any illness.  Good news. Evan also had another EKG and visit from his electrophysiologist.  They had originally turned his pacemaker down to 80, but Evan was […]

The past few days have been a little rougher for us. Both Bill and I are beginning to feel the strain of doing this routine over and over.  It’s not like we haven’t been enormously blessed and have had such a smooth experience thus far, but we are entering a lull and need to get […]

Evan continues to make steady progress and has been showing signs that his body is turning a corner, giving the doctors a lot of optimism in his recovery. – He is continuing to be weaned from various blood pressure medications.  The nurses continued to dial down his epinephrine dosing to reach the level his doctors […]

Short and sweet – We just got briefed on Evan’s progress and so far everything is looking great!  Big boy is doing awesome and continues to kick ass in the OR! Dr. Hirsch is now working on installing the BT shunt that will connect the subclavian artery to his pulmonary atery.  She is also going […]

  We had our second appointment at the University of Michigan on June 10th. This appointment put little Evan at 34 weeks and 5 days. We started the day off with a fetal echocardiogram with Jane. Evan was awake and ready to play. He was rolling over and just moving a lot in general making […]

Last Thursday we had our all-day appointment at U of M.  We weren’t sure what to expect but hoped to come away with a better understanding of the process we are going through and the facility that will become our second home.  It didn’t take too long to get there – about 1.5 hours – […]

I created a new page to describe the differences between a normal heart and one like Evan’s… you can see it under the menu item Evan’s Condition or by clicking here.  

The fetal echocardiogram is in the morning, I need to get some rest but I am too nervous. We have seen ultrasound after ultrasound of Evan’s heart but this is the day where we will hopefully learn something substantial about how well it’s working and perhaps get a glimpse into how the surgeries might go […]