It’s a very surreal feeling, being back in general care. We were here once before for a very short time. We thought then that we were on our way home, that was two weeks ago. Hopefully this time will be different. It feels different. All that stands in our way is one more trip […]

The short of it: Evan had a seizure early this morning and several more throughout the day.  They are the result of a stroke he had some time ago but not sure when.  He is comfortable, sleeping, and stable.  His brain activity is being monitored continuously for 24-48 hours.  He is NPO again (removed from […]

Short and sweet – We just got briefed on Evan’s progress and so far everything is looking great!  Big boy is doing awesome and continues to kick ass in the OR! Dr. Hirsch is now working on installing the BT shunt that will connect the subclavian artery to his pulmonary atery.  She is also going […]

  We had our second appointment at the University of Michigan on June 10th. This appointment put little Evan at 34 weeks and 5 days. We started the day off with a fetal echocardiogram with Jane. Evan was awake and ready to play. He was rolling over and just moving a lot in general making […]

Last Thursday we had our all-day appointment at U of M.  We weren’t sure what to expect but hoped to come away with a better understanding of the process we are going through and the facility that will become our second home.  It didn’t take too long to get there – about 1.5 hours – […]

Today started out rough.  Not because of anything with baby boy.  He is doing great.  The appointment this morning was great.  Easter was great.  Even the weather decided to cooperate lately.  But today started off with sadness as we learned that another baby earned her angel wings.  The CHD community is so open and supportive […]

I created a new page to describe the differences between a normal heart and one like Evan’s… you can see it under the menu item Evan’s Condition or by clicking here.  

The fetal echocardiogram is in the morning, I need to get some rest but I am too nervous. We have seen ultrasound after ultrasound of Evan’s heart but this is the day where we will hopefully learn something substantial about how well it’s working and perhaps get a glimpse into how the surgeries might go […]

Ohhhhh… the waiting game. So we had the first ultrasound, found out it was a boy, and was told that he may have hypoplastic left heart syndrome. The ultrasound was right after lunch on a Tuesday and neither of us went back to work, instead we spent the rest of the day on the internet […]