livingwithevan.com

Summer Plans and Counting

There isn’t a lot new going on with Evan but I wanted to make a quick post of pictures and this video of him counting to 14. Sarah and I were both pretty surprised the first time he did it, it’s not something that either of us were actively working on. It just goes to show how easily kids can pick up things.

One thing that is new is that we met with a dietitian and they suggested that we stop his 2 daytime feedings, leaving only the two that he gets at night. The rest of his calories we would try to actually feed him! He is doing much better with real food but I’m afraid that he’s not ready for quite this dramatic of a change. He does much better for the therapist than he does for us. On Monday for example, he ate 1.5 chicken nuggets, 1/4 cup of peach oatmeal and a 1/4 cup of applesauce. That’s not bad, but it’s far from the 9 ounces that he gets through the tube. Hopefully this will give him more of an appetite and he will want to eat more. Wish us luck!
Enjoy the video and the pictures…

 

Comments

7 responses to “Summer Plans and Counting”

  1. Denise Pajak Avatar
    Denise Pajak

    Bill & Sarah I think that your cherub Evan is precious & adorable…& I am very thankful to be able to sort of keep up. Miss seeing both your faces & getting the scoop in person (don’t ya know) & continue to keep you all in my prayers! ~Denise

  2. Aunt Margaret Avatar
    Aunt Margaret

    What a courageous little guy, and so cheerful! One step at a time!

  3. Sarah Avatar
    Sarah

    I can’t watch the video on Chrome at work. IT… what is going on?

    1. Sarah Avatar
      Sarah

      nm it showed up after i submitted a comment. Before it was just a grey box with a sad face in it… 🙁

  4. William Avatar

    I got a security warning bar at the top when I tried viewing it at work and once I clicked enable it played fine. I took this video with my phone and didn’t upload it to Vimeo like I normally do, that’s why it’s not working the same way. If other people are having issues I’ll try uploading it to Vimeo instead. Just let me know.

  5. Gma Nan Avatar
    Gma Nan

    I loved it!! He is so smart and just wonderful. Love that little man. Way to go Evan!! xxoo

  6. Kate Avatar
    Kate

    So awesome love the teeth brushing! Great job mom and dad!!!

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