livingwithevan.com | Evan Updates with Pictures and Video

Evan Updates with Pictures and Video

Posted on November 10, 2012 by William 1 Comment

I realized when I sat down to write this post that we have not written much about Evan and how he has been doing since we were in the hospital almost 6 weeks ago. Sorry about that. There have not been a lot of developments but the ones we have had are been pretty good ones. Evan is now walking! Not completely on his own, but he stands and walks along walls, furniture, and he pushes toys and chairs to get where he wants to go. When he’s not walking he crawls all over the house. I like to put him in one end of the house, walk away from him and wait for him to come after me. Putting his favorite cartoon on TV is great for that, once he hears the theme music he puts it in high gear.

When Evan is pushing his doggie, you can seen the pride in his face… It’s a truly wonderful thing to see him light up when he does something new. He is very motivated by praise, lots of clapping and yah’s. He will even stop what he’s doing and clap with us, sometimes releasing his grip on whatever he’s holding for a few seconds.

We started going back to OT and PT each once a week soon after we got home and things have been going pretty well. The people there had not seen him in over two months so they were really surprised and pleased with how much progress he’s made despite being in the hospital… well progress in motor skills anyway. His oral aversion is still there and although it is better he is nowhere near being able to take any amount of food that you could call nutrition. Evan will open his mouth just the slightest bit and let you put something in but he pushes and spits most of it out. He doesn’t make faces, it doesn’t seem to be that he doesn’t like the taste, he actually comes back for more, he just doesn’t know what to do with it once it’s in his mouth I think. It’s a very slow process and we’re making very slow progress but it’s moving in the right direction so we cannot complain. We had physical therapy on Halloween so naturally I dressed Evan up in his costume.

We didn’t go trick or treating but we did hand out lots of candy and Evan really liked seeing all the people come to the door. He was very interested when there was a knock at the door and would crawl over to greet them. We have a great group of friends in the area and a bunch of us got together to celebrate Halloween. One 3 year old, two 2 year olds, and 6 kids under 2. They plan was to get all of them on the couch for a group picture. Can you guess how well that turned out? Be sure to look at the pictures in the gallery at the bottom to see the progression of Evan’s meltdown.