I am so very thankful that our medical professionals caught this when they did. I feel a sense of calm that we have the opportunity to be prepared for what is going to come. I have been doing a lot of reading and I have seen many stories where the family had no idea, even with the current technologies, that their child was suffering from a heart defect. After seeing an ultrasound of a normal heart and the one of Evan’s, I don’t know how this is possible, the differences are dramatic, but apparently it happens. A family takes their baby home with no idea that anything is wrong, the baby starts to exhibit symptoms like feeding problems, blue lips, lethargic, etc. What a terrible thing to go through. Not having all this worry would be nice, but I’ll take the worry gladly with the ability to plan.
We’ve had about 4 ultrasounds, a fetal echocardiogram, appointments with doctor’s, cardiologists, high-risk OB’s, etc. The biggest appointment yet is coming up in a couple weeks. We’re meeting with the doctor’s at the University of Michigan for the first time. This is more than likely where Sarah will give birth and where Evan will have all of his surgeries. I am really looking forward to hearing what they have to say and to see the facility. They are the #4 hospital in the US for pediatric heart care so I know we will be in good hands. It’s going to be a loooong day though. 830AM until 4PM with back to back appointments. Cardiologist, pediatrician, genetic counselor, pediatric cardiothoracic surgeon, high risk OB, ultrasound…. It’s going to be a great day, honest. I think we both need someone to help put our minds at ease about this whole thing and I think they are just the people to do it. Don’t get me wrong, the people at Bronson hospital have been great, but they have not seen nearly as many of these things as U of M. Our cardiologist at Bronson has only ever had one other patient with exactly what Evan has (and he’s doing great and has completed all his surgeries). I really want to hear it from the experts in the field that see these all the time.
Well, I should be getting to bed….Daddy boot camp in the morning. I can’t imagine that I am going to learn much, but that’s ok. 🙂
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